At the Democratic convention last summer, Ms. Urquiza very publicly denounced Mr. Trump. But his group is non-partisan, and with Mr Biden now six months into his tenure and squarely in charge of the response, she and other activists are turning to him. She wrote to the president asking him to meet with the board of directors of her group; the White House proposed other officials instead.
“For the record, I feel ignored,” she said. “We all do.”
Many survivors and family members see the president as too keen to declare ‘independence from the virus’, as he did on July 4, and not attentive enough to the plight of the ‘long haul’ who desperately need it. financial and medical assistance.
Ms Bishof, the former Florida firefighter, said members of her long-haul group applauded loudly when Senator Tim Kaine, Democrat from Virginia, described himself as a Covid long-haul during the ‘a Senate health committee hearing in March. “We were like, ‘Contact him now! She exclaimed.
Ms Bishof was also instrumental in forming the Long Covid Alliance, a coalition of health and coronavirus-related groups, which won a preliminary victory in April when Representatives Donald S. Beyer Jr., Democrat of Virginia , and Michigan Republican Jack Bergman introduced bipartisan legislation authorizing $ 100 million for long-haul Covid research and education.
Others have found it more difficult to gain buy-in from both sides.
After her father’s death from Covid-19, Tara Krebbs, a former Republican from Phoenix who quit the party before Mr Trump was elected, contacted Ms Urquiza on Twitter. She was frustrated and angry, she said, and felt lonely. “There was a lot of silent mourning at the start,” she said, “because Covid is such a political issue. “